If you like links, just keep reading (and clicking)…
• American Cancer Society – 1-800-227-2345- Provides information about cancer, treatment options, insurance concerns, support groups, transportation, lodging through Hope Lodge, clinical trials, hospitals, & other programs.
• American Institute for Cancer Research – continuously committed to funding and interpreting the promising and vital field of cancer research.
• Canadian Cancer Society
• Mayo Clinic Online
• National Cancer Institute Booklet – “What You Need to Know About Cancer of the Esophagus” Learn about types of esophageal cancer, staging, treatment, and questions to ask the doctor.
EC Discussion Forums, Support Groups and Chats
• Gilda’s Club – is a free, non-profit support community for anyone touched by cancer. They offer support groups run by trained professionals, stress reduction & relaxation, lectures, workshops, social events, and a special playroom & program for kids. The whole family meets to discuss living with cancer together.
• KATS (Kids Adjusting Through Support) – Helps children & families cope with serious illness or loss. In addition to coping support groups, they provide family camping retreat with Camp Good Days, the Memory Tree Project, and various workshops & community services.
• Sometimes the best doctors and cancer treatment centers are away from home. There are several non-profit groups that can provide help with transportation to / from treatments, help with lodging or airfare.
• Mourning Dawns
• Daily Strength
Transport and Lodging
• Corporate Angel Network – 914-328-1313 – Corporate Angel Network arranges free travel for cancer patients to treatment across the country using empty seats on corporate jets.
• Angel Flights – 918-749-8992 – Angel Flight primarily serves patients needing transportation to or from the heartland region. By coordinating with other organizations, Angel Flight can arrange transportation for patients on longer flights to other parts of the country outside of the Heartland region.
• National Patient Travel Center – 800-296-1217 – The purpose of the National Patient Travel Center is to ensure that no ﬁnancially-needy patient is denied access to distant specialized medical evaluation, diagnosis or treatment for lack of a means of long-distance medical transportation.
• Joe’s House – 877-563-7468 – Joe’s House is a nonprofit organization providing an online nation-wide list of places to stay to assist cancer patients and their families find lodging near treatment centers.
Other EC Organizations
• CECI – Cohen Esophageal Cancer Initiative
• DeGregorio Family Foundation: Annually funds collaborative research on the pathogenesis, early diagnosis, and treatment of Upper Gastrointestinal Malignancies. 100% of donations is used toward research.
• ECAN: Dedicated to prevention of EC by awareness of Heartburn
• ECEF: to bring awareness and educate the public and medical community in New York, New Jersey, Connecticut, and Pennsylvania areas about Esophageal Cancer. To walk the journey with patients who have this disease and to support research projects dealing with esophageal cancer.
• Fio Foundation: Advocate American the Cancer Society Guidelines (ACS) for early EC screening for individuals with precursory conditions or family history of EC
• [UK] Oesophageal Patients’ Association: UK-based organization providing EC information since 1985
• Cathy’s EC Cafe: Thanks to Cathy’s EC Cafe for the years you provided support, hope and information. This site has expired.