Diagnosed stage 3 adenocarcinoma in April 2006, I went through chemo and radiation, then surgery in August 2006. No complications afterwards, but it took some time to get used to the new ways to eat and sleep. I'm on the board of the ECAA and you can always contact me at email@example.com.
Years since diagnosed:12
Hello. My brother had surgery 12/3/15. He is still feeling week it\'s hard to eat has 2 shakes a day, and feeding tube at night. Any suggestions. 8 weeks pot op read more.
Any advice on what/how to eat. Had surgery 3 weeks ago, and having a hard time eating...not much appetite. read more.
Hi Roger I was diagnosed with adenocarcinoma in March 2012 I had chemotherapy then Ivor Lewis surgery in August then post op chemo. I just wanted to ask if the worry of hospital check ups and scans, endoscopy\'s etc ever gets less worrying? I have an appointment on 27th January with my Oncologist and i think she may suggest an endoscopy as i keep coughing when eating and am getting twinges or slight pain in my jaw but I do seem to get them when i am stressed. Please can you tell me if thing get easier :) take care and good health to you Regards Margaret read more.
Hi Roger I was diagnosed with adenocarcinoma in March 2012 I had chemotherapy then Ivor Lewis surgery in August then post op chemo. I just wanted to ask if the worry of hospital check ups and scans, endoscopy\'s etc ever gets less worrying? I have an appointment on 27th January with my Oncologist and i think she may suggest an endoscopy as i keep coughing when eating and am getting twinges or slight pain in my jaw but I do seem to get them when i am stressed. Please can you tell me if thing get easier :) take care and good health to you. Regards Margaret read more.
My husband had surgery of the esophcas in March 2014 , he can\'t seem to eat very little , nothing tastes good and he can\'t sleep . I\'m at my wits end . Sleeps on left stomach hurts sleeps on right he spits up read more.
On July 28, 2014 my boyfriend had an esophogectomy. Prior to the surgery he received six weeks (one time per week) chemo therapy and six weeks (five times per week) radiation. He spend a month in the hospital post and recovery has been slow. Since the operation he has been fed through a jejunostomy (J tube). Tomorrow it will have been 15 weeks since the operation and he is still not able to eat. Once he was released to eat orally he started with clear liquids then full liquids. After about two weeks of broth, cream of --- soup and ice cream his throat began closing up. On October 8th he talked to the surgeon about his concerns and an appointment was scheduled to dilate what is now his esophagus. As of yet the procedure has not been completed (due to warfarin, wanted to do at hospital, throat too tight and requested a swallow study, too tight and requested a CT scan, then a fever). He is now at a point where he cannot swallow even clear liquids (tea, water, broth, etc.). He is becoming more and more upset with himself because he had the operation. Partly because they did not find any more cancer and that he can no longer eat. I was wondering if you have heard of this complication before. I am looking for answers, options, or questions to talk with the surgeon about. Thanks, Ellen read more.
Hi Roger, So happy to hear that you are doing well. My husband Jerry went through radiation five days a week for seven weeks and chemotheraphy. He is really having a tough time with foods and was just diagnosed as being malnutritioned. He is 6\\\'6\\\" and 160 lbs. The doctor is asking him to gain 5 lbs in one week. I think that is a tall order for Jerry but he has to try. What type of foods do you recommend? I am waiting to hear back from a Nutrition Specialists. Any recommendations would be appreciated. Thank you read more.
My brother has stage 3 esophageal cancer. He has had 2 rounds of Chemo and 8 rounds of radiation. He was so sick from the chemo they decided to stop it after 2 rounds and just carry on with radiation and the surgery. What are your thoughts on this? Can they still get all the cancer?? Thank you. Brenda read more.
Roger, are you seeing anyone successfully treating in the Southern CA area? My husband was just diagnosed with stage IV. EC, we are meeting with the surgeon for a consultation tomorrow and next week the hematologist. We also have additional testing and second opinions lined up next week. Thank you, Gayle R. 7/9/15 read more.
A family member just had transthorasicesophagectomy with gastric pull-up (TTE) surgery on Friday as part of his treatment for EC. He is hooked up to a ventilator to breath and has been kept sedated and in ICU since. Yesterday the doctors told us that he had developed Pneumonia and some sort of infection and will need to remain sedated and vented. Today the doctor stated that his levels were getting closer to where they needed to be but that they were going to sedate him even heavier to get the levels looking better. Does this sound normal? Does my loved one have a chance? Thank you in advance for reading my questions..... Melissa read more.
My relative has been diagnosed with Adenocarcinoma of oesophagus and now he is on three chemo cycle and we have been advised surgery and I want to know life post surgery read more.
I have been diagnosed with stage 3 adenocarcinoma and recently completed 6 weeks of radiation and chemo. Limited side effects so far. I meet with the surgeon tomorrow. I am particularly concerned about diet suggestions for the first few weeks post surgery. I know soft food is recommended, and there are cautions about both dairy and sugar. But any suggestions you have will be much appreciated. read more.
My husband had chemo, radiation, and esophagectomy. Then he had AFIB and went through a hybrid maze procedure. Now, he is pretty worn out and when he eats he has stomach cramps. Not enjoying much, feeling weak and not wanting to eat...we have heard some more positive stories but has anyone else gone through this discouraging phase? read more.
My name is Larry seibert and I have esophageal cancer. I was treated with chemo and radiation 3 years ago and now the found another spot. It was not there 6 months ago and is on a lymph node. My doctor advises the surgery but I am a musician and am very scared, do you have any advise? read more.
My father was just diagnosed with EC, the PET scan is scheduled for Wednesday. We will see the specialist on Monday. We are really nervous and scared, we have never gone through a process like this. What would you suggest for us to ask doctors? Are you aware of the survival on this type of cancer? It\'s a very difficult situation as you know. I do not even know where to begin on asking questions or what to say. read more.
My dad has esophageal cancer that has spread to the brain. He had the esophagus surgery several years ago. He has just completed 10 full brain radiation treatments and seems to be deteriorating fast. Does anybody know of any new or experimental treatments that may help? read more.
My husband was just diagnosed with Stage III adenocarcinoma with stomach cancer and lymph node involvement of both sides of the esophagus, abdomen and the retropertineum. He was told it was inoperable and will be receiving radiation and chemo. We went for a second opinion to UofM hospital and they concurred. I\\\'m not sure if we should go for a 3rd opinion or not. I have been doing some research in Dana Farber Cancer Center in Boston. Would you have any physician or cancer center suggestions? Thank you. read more.
did you ever feel you lost YOU somewhere along the trip? read more.
I had 6 weeks chemo and radiation along with robotic surgery to remove esophagus and part of stomach along with 37 lymph nodes which all were clear except one,its been 3 months,I have lost 50 pounds so far but I have spasms in my throat whenever I eat,how long will this last? read more.
Roger My name is Mark Lambley. I live in Naples Fla and am 54 years old. 3 weeks ago I was diagnosed with this disease. I had surgery this week to put a stent in my espohugus to let saliva and food pass to my stomach. the ct scans say it might have spread to 2 lymp nodes just out side but they need more testing my surgeon said it was stage 2 or 3 depending on the muddled pictures they got from th CT scans. I am an athlete and never ever smoked anything. MY parents are both in there 80s so no help there as far as understanding and I am not married. I was hoping you might be able to call me and walk me through your steps as the more I investigate the more I become depressed. my phone number is 239-321-9707 Thanks read more.
Hi Roger , I have. Stage 3 esophageal cancer. I just finished 4 weeks of chemo and radiation. I have surgery scheduled for October 5th. They plan to remove 70% of my esophagus. What can I expect as far as recovery from surgery. Thanks. Edu read more.
How much chemo did you have to go through? I may have to do some radiation on a spot on one of my hips. My doctor isn\'t talking any surgery at this point read more.
Hi roger, so happy to hear you are cancer free! My mom, age 64, was diagnosed on Friday with EC, they are not sure if it is stage 2 or 3 yet as they are waiting for results of her pet scan, which she is scheduled for on this Saturday. She is starting radiation and chemo early next week. I am scared and clueless as I have no idea what to expect. I am reaching out because my mom cannot eat hardly anything and it breaks my heart. She basically chokes on anything - she has been eating cheesecake, ice cream and eggs. And shakes. I was wondering if you had any ideas suggestions on foods or shakes ? Not sure if you will but thought I would ask. Thank you for sharing your success story and I hope my mom can share one day too! read more.
Are you aware of any clinic trials or active therapeutic programs using immunotherapy or cancer genetic modification to treat recurrent esophageal carcinoma post chemo/radiation and Esophagectomy? read more.
Hi Roger, My name is Bob, and I was diagnosed in December 2016, went through chemo and radiation . I had an Esophagectomy on June 20th 2017. I have been home 5.5 days. I am having a problem eating, I can now swallow OK, but my tastebuds are so fouled up that nothing is appetizing. When try to eat something that doesn\'t taste good I start to gag! I have started losing weight, and I am back on a full compliment of enteral feed through a J tube. Do you or anybody else have a suggestion on types of food, tricks, magic or vodoo to help me eat. Thank you Bob read more.
My father is in need of support. He is 80 was healthy strong and active before esophageal cancer. He did well with chemo/radiation simultaneously over 5 1/2 weeks had esophagectomy and problems at first with leakage and aspiration pneumonia and other complications. He went in 7/6 and is still in the hospital and is very depressed, weak and giving up. Do you know of a support group near Annapolis MD? A survivor he can talk to to give him hope. My email is firstname.lastname@example.org read more.
did you suffer any pain 6 months after the op? i had op in july to remove tumour from oesophagus but 8 months later i am suffering pain that is hard to handle. i don\'t know whether it is scar tissue or muscle damage. i would love to know if anyone else has suffered this pain and how to get over it. i\'m living on ibuprofen and panadol 4 to 5 times a day. read more.
My 40 year old son in law has been diagnosed with Stage 4 EC I don\\\\\\\'t see too many positive results at this stage. Can you comment read more.
Hi I’m Mahmood Rahmati. I am a PhD student at Righam Young University in UT. Recently I’ve noticed that my mom has got this cancer. My family did not want me to know firstly but I noticed it when my mom wore scarf in our skype call. I did not let my mom know that I’ve figured out but I called my relatives and based on what I’ve understood my mom has got something between type 2 or type 3 cancer. Doctor has suggested chemoradiation with surgery. Because of my visa neither of us can commute to see each other. Do you have any suggestions or ideas that may help me ? read more.
Do you eat lettuce and/or corn? read more.
I’m 54 n was just diagnosed with stage 4 esophageal cancer with Mets to bone. I’m having great difficulty controlling or treating the bone pain. Any suggestions? I also feel like I’m drowning or suffocating when I lay down to sleep. Any suggestions for that? I’ve been sitting in a chair sleeping because I can’t recline due to pain n now have swelling in my feet n legs read more.
I sent an email to your ecaa email address. Just wondering if you received it. read more.
Hi, I was just been diagnosed with EC T1b, they recommend here in Germany to do the surgery but no Chemo or Radiation. Any information why? read more.