I was diagnosed with EC January 27, 2000 and have been NEC since June 13, 2000. I was 42 at that time. My staging at the time of surgery was a 2, as the cancer had not gotten through the esophageal lining and no nodes were involved. Preop I had taxol, carboplaton and 5FU along with radiation. Postop I returned to work at 8 weeks, packing my abdominal wound. I worked selling group health benefits until May of 2012 when chronic issues related to my cancer and surgery finally stopped me from traveling for the job. Today I spend a couple hours a day on the ECAA Facebook page answering questions and supporting those being Dx with EC and I try to watch Facebook and Twitter for EC news and advancements. At the time of diagnosis I was married and had 3 children from age 6 to 14. My wife Barb and I will celebrate our 34th anniversary in December. Her strength and compassion through the treatments and now that I am struggling with neuropathy, diabetes etc. has kept my going. I am often asked about the EC surgery, treatments etc. and often the question is, "With all that is involved in the treatment, the surgery and the post op issues, was it worth it?" Everyday is a blessing to be celebrated. I have seen my children grow into fine young adults. I was able to be here for their graduations, weddings and to I hope soon see our first grandchild. I am able to serve the Lord, my family, church and local and EC communities now for 15, almost 16 years. Yes the battle is worth fighting to win! My mother- in-law's prayer group prayed the rosary every day for my healing and I passed the hours in scanners and chemo chairs and beds praying to Mary, the Vereranle Fr. Samuel Mazzuchelli and many other Saints like St. Jude and St. Joseph. Fr. Mazzuchelli started or local church and was the closest think to a local Saint I could find. I lost my father to EC in October of 2005 and my mother-in-law to the disease in November of 2012. I appreciate the ECAA and Bill Drake for coming to Burlington to record my story. I hope it helps others to come out fighting this terrible disease. I am increasingly more optimistic now that the treatment of EC is showing more survivors at 3, 5, 7 and 10 years post diagnosis and many of these survivors had a later stage of the disease.
Years since diagnosed:18