Search Survivor's Name:
Search
or or

Avatar Image
Jane, Pickett - Stage IV
At age 34, I was diagnosed with inoperable squamous cell carcinoma of the esophagus. This was in Feb. 1974. At the time of diagnosis, my children were 13, 12 and four. My husband and I now have nine grandchildren, and are retired on a lake in Mississippi. We went for a second opinion to Washington University, and had the original diagnosis confirmed. Fortunately, I knew of a doctor at University of Fl that had trained with the doctor in ST. Louis and after a few calls, we made arrangements with Shands UF in Gainesville to be treated with radiation by Dr. Rodney Million and Dr. Steven T. Kraus . At the time, this was considered an experimental treatment, and at the end of the treatment, I was given less than a 5% chance to survive for 5 years. I had originally been told that I had two weeks to six months to live, and to get our affairs in order. I have since had non-hodgkins lymphoma in the stomach, not associated with the esophageal cancer, and a tripple-by-pass which was considered to be a result of the high radiation that was received. I have only 30% mobility of the larynx also due to the radiation. I have to be dilated every 3 or 4 months as I have a narrow stricture due to the radiation. Other that that, you would never know I had been so ill. If anyone is interested in more information regarding my illness, I can be contacted via e-mail. yazoopic@aol.com
42
Avatar Image
William, V - Stage I
I am a retired Police Sergeant succuming to Esophageal Cancer in 1991. I had a complete esophagus removal in 1986 after suffering, from birth, acid reflux due to a missing flap at the end of my esophagus causing me to develope Barrett's esophagus. In 1986 I was diagnosed with Cancer resulting from the Barretts. I did not require any post treatments, mainly because they were not widely used back in 1986. Learning to adjust to a new digestive system, with my stomach attached to the back of my throat has certainly been a challenge over the next 26 years. However with God's support and great family and friend's support I have survived amid many life's changes brought on by this dramatic change in lifestyle. I now successfully own and operate my own broadcasting radio station and living a comfortable life.
30
Avatar Image
Ron, Watson - Stage III
I am a 68 year old male, ... diagnosed with Esophageal Adenocarcinoma at age 49. I had surgery with Stomach pull up only. Chemotherapy and Radiation were not administered since I was considered terminal with no chance of survival. 19 years later I am Cancer Free . The Medical Profession consider my case to be something akin to a miracle. If anyone cares to contact me, ... I can be reached at : watsonr@mts.net
20
Avatar Image
Robert Marvin - Stage I
Robert Marvin - T0N1M1 - Diamond Bar, CA DX in 1996, pneumonia from treatment in 1997, recurrence in December 1997, surgery in March,1998, THE. All clear since. Self resolving small bowel obstruction in 2011. Pacemaker inserted in 2012. Retired in 12/15, having worked for ADP for last 20 years.
20
Avatar Image
Ron Kramer - Stage III
18
Avatar Image
Mimi, W - Unknown
Diagnosed when I was 11, 18 years ago. Had esophagectomy, colon resection, radiation and chemo.
18
Avatar Image
Todd, C - Stage III
Diagnosed in October of1998 Stage III EC at age 36, 5 weeks radiation. Removal of 60% of esophagus and 30% of stomach. 6 months chemo with Cisplatin & 5FU. Currently working 60 to 70 hours per week. Still deal with some minor side effects.
17
Avatar Image
Teri, B - Stage III
I was diagnosed when I was 41, had port surgery on my 42nd birthday. I had 35 sessions of radiation and 4 cycles of cisplatin and 5fu. Did not have surgery as tumor was attached at one end and wound up the interior of my esophagus starting at the junction up 2 1/2 inches.
16
Avatar Image
Bart Frazzitta - Stage III
I retired from the position of Vice Chairman & CEO of a major consulting firm in 2007. I am a 14 year survivor of EC. My wife and I formed the Esophageal Cancer Education Foundation in 2003 to fight this dreaded disease on three sides. to bring awareness of this disease to the public to walk the journey with patients who have this disease to support research projects that will lead to an early detection of this disease.
16
Avatar Image
Craig Fenton - Stage II
I was diagnosed with EC January 27, 2000 and have been NEC since June 13, 2000. I was 42 at that time. My staging at the time of surgery was a 2, as the cancer had not gotten through the esophageal lining and no nodes were involved. Preop I had taxol, carboplaton and 5FU along with radiation. Postop I returned to work at 8 weeks, packing my abdominal wound. I worked selling group health benefits until May of 2012 when chronic issues related to my cancer and surgery finally stopped me from traveling for the job. Today I spend a couple hours a day on the ECAA Facebook page answering questions and supporting those being Dx with EC and I try to watch Facebook and Twitter for EC news and advancements. At the time of diagnosis I was married and had 3 children from age 6 to 14. My wife Barb and I will celebrate our 34th anniversary in December. Her strength and compassion through the treatments and now that I am struggling with neuropathy, diabetes etc. has kept my going. I am often asked about the EC surgery, treatments etc. and often the question is, "With all that is involved in the treatment, the surgery and the post op issues, was it worth it?" Everyday is a blessing to be celebrated. I have seen my children grow into fine young adults. I was able to be here for their graduations, weddings and to I hope soon see our first grandchild. I am able to serve the Lord, my family, church and local and EC communities now for 15, almost 16 years. Yes the battle is worth fighting to win! My mother- in-law's prayer group prayed the rosary every day for my healing and I passed the hours in scanners and chemo chairs and beds praying to Mary, the Vereranle Fr. Samuel Mazzuchelli and many other Saints like St. Jude and St. Joseph. Fr. Mazzuchelli started or local church and was the closest think to a local Saint I could find. I lost my father to EC in October of 2005 and my mother-in-law to the disease in November of 2012. I appreciate the ECAA and Bill Drake for coming to Burlington to record my story. I hope it helps others to come out fighting this terrible disease. I am increasingly more optimistic now that the treatment of EC is showing more survivors at 3, 5, 7 and 10 years post diagnosis and many of these survivors had a later stage of the disease.
16
Avatar Image
John Parkes - Stage III
Diagnosed T4bN0M0 squamous cell and treated with chemo/rad. After blocking the esophagus 100% for 5 months (G-tube feeding) the tumor left behind an esophageal-tracheal fistula (hole) that was covered with stents. A year after dx the fistula required trachea repair surgery followed in 3 weeks by a 3 hole transthoracic esophagectomy. Over the next 4 years there were 13 dilations. You can find me regularly on the esophageal cancer group of www.smartpatients.com
16
Avatar Image
Eric Greene - Stage II
Diagnosed with Stage 2 EC 10/6/2000. Chemo, radiation and TTE surgery on 4/9/2001. A few post surgical bumps in the road, but doing well 14 years later.
15
Avatar Image
Lee, H - Stage II
I was diagosed with Stage 3 EC in January 2001, had 4 sessions of chemo, no radtiation and then Ivor Lewis surgery on July 3, 2001. Restaged to Stage 2B after surgery as no lymph nodes involved. My surgery was performed By Dr Donald Low at Virginia Mason Hospital in Seattle Washington. I would highly recommend him to anyone with EC requiring surgery. In the past 12 years I as many have digestive problems, i.e., dumping, bile reflux, and slow stomach emptying. In addition I have suffered from Neuropathy in my feet and fingers caused by a Platin based chemo administered during pre-op chemo. I had no post op chemo. I have had 3 endiscopys over the 12 years since surgery, each time because of digestive problems. I also have had numerous CT scans but have never received a PET scan. I have have led what I called a modified normal life since surgery. Modified in the number of meals and quantity of food I can eat at one sitting. I also have to sleep on a 7" wedge at night to hold bile reflux at bay. I also have had to greatly reduce the amounts of fats, sugars and hot spices. It's been great to be alive though.
15
Avatar Image
Joe - Stage I
15
Avatar Image
Mike Middlesworth - Stage II
Diagnosed March 2001, adenocarcinoma. Surgery April. No chemo or radiation. Developed afib, had to have a pacemaker 2004, stent for abdominal aneurysm 2005. Uneventful since.
15
Avatar Image
Barbara, E - Stage III
I was diagnosed at age 44 without any prior history of reflux or heartburn. After some months of difficulty swallowing I went to the ER with an upper GI bleed, had surgery within two weeks and then a clinical trial of concurrent chemo and radiation. I have been extremely fortunate to remain cancer free, to have continued to work full time (except for six months post surgery while getting chemo). Ten years post treatment I was diagnosed with Barretts esophagus in the remainder of the esophagus and was treated with a series of ablations. Post treatment dietary challenges have kept life interesting, but have not gotten in the way of doing what I really want to do. My children were 7, 9 and 18 at the time of diagnosis and I am extremely grateful to see them graduate high school and either graduate or continue in higher education.
13
Avatar Image
Dick, Stienmier - Stage III
13
Avatar Image
Rick Smith - Stage I
Retired from UPS. Had difficulty swallowing and extreme burning in top of abdomen. Thought I had an ulcer. I was a heavy smoker and heavy drinker and worked a lot of hours. Burnt the candle at both ends for 30 years. Had a great time along the way, no regrets, just go with the flow and expect a new normal. Enjoy every day...I think Cancer survivors understand that better than most folks.
13
Avatar Image
Turner,Bill - Stage IV
Diagnosed April 7, 2003 with stage 4 ec, I had chemo, radiation, ivor-Lewis August 2003 at Kirkland clinic UAB. I have been blessed to survive, and 3 years ago I was blessed with a new daughter. God is great!
13
Avatar Image
Nancy, W - Stage II
Diagnosed at 44 years old in 2004 after 20+ years of thinking Rolaids was a food group. Aside from cancer my only other issue was that I was overweight, which I had been all my life. Had a transthorasicesophagectomy with gastric pull-up (TTE) on Dec 30, 2004. Technically at this point I was cancer free. I agreed to post-surgery chemo and radiation to ensure that if any stray cancer cells got loose they would be eradicated. I survived surgery but the chemo and radiation almost killed me. But I kicked its but before it could kick mine. First NED report Dec 2004 and ever since. Recently (Aug 2013) I saw my Radiation Oncologist for, hopefully the last time. Never take your life for granted, this is life, no one gets out alive. Treasure your moments...
12
Avatar Image
Patrick H. - Stage I
12
Avatar Image
Paul, H - Stage II
12
Avatar Image
Michelle, H - Stage I
I was diagnose in 2004 of stage one esophogeal cancer I was 37 and teaching at the time as well as a singer my right vocal cord had become paralyzed and I needed a trache that is when they found the cancer, it was aggressive and I had chemo and radiation from July- October 17 2004 and I have been cancer free since I still have a trache but I'm a Survivor by the way they still dnt know what cause my cancer since I've never been a smoker they say it could have been Acid Reflux but I've never had symptoms of that either. I'm Still Here by my Faith and the Grace of God I speak with a whisper along with my trache and every now and than I get my esophagus stretched and a biopsy just to make sure I am fine I'm eating well not as much, also let me inform the readers you need to b very careful about your radiologist my vocal cord got melted as a result of radiation that I receive to much of it at the time but was not aware of but I'm still Here to see My babies off to college and grand babies being born and that's worth it
12
Avatar Image
John, H - Stage I
11
Avatar Image
DavidThomson - Unknown
Computer Consultant, retired Royal Marine Reserves Lieutenant - fitness helped a lot
11
Avatar Image
Anderson, Judy - Stage III
I was diagnosed on 7/5/05, after waiting anxiously over a three-day holiday weekend for my biopsy results. Had chemo & rads in the fall of 2005, and a modified Ivor Lewis on 2/27/06. had a lot of complications, was in the hospital almost 2 months, went home on a a feeding tube and a still healing incisinal wound. Spent the first year depressed, then discovered it was a side effect of the Reglan Rx, and got better when I stopped that drug. Had horrendous reflux/aspiration the first three years or so until I discovered the Prevacid was making it worse, no better, and stopped that too. Eight years out, I am doing pretty well, and am on as few prescriptions as possible. Once in a while, they talk me into somethingnew, I go through a week or two of horrendous symptoms until I have the sense to toss the stuff out. When will I learn?
11
Avatar Image
Lin, M - Stage III
Celebrating 10 years after diagnosis! Optioned out of surgery. Grateful for another beautiful day! ♥
10
Avatar Image
Keith Solsbury - Stage III
I am Maggie, Keith's wife, soul mate, caregiver, Primary Provider and spokeswoman for him. We found out when we first got married Keith had GERDS, the GI doctor told us to take tums avoid certain foods, never once told us heartburn could cause Barrett's or Esophageal Cancer. that was 24yrs ago. The data was there but sadly doctors were not up to date or aware. 12 years later, Keith got really sick camping had to drive him home to the hospital. He was admitted and that is when the best doctor in the world Dr Harold Schwartz, in Derby CT. did an endoscope on Keith and the results came back that he had Barrett's, put him on Acid medication and told him he need to be scoped yearly to keep an eye on things. Still not knowing that it could turn to Cancer. The odds I guess were low by the studies they had that were completely out dated. Been in the medical field since I was 19 yrs old, never in my life did I hear that chronic heartburn could cause Cancer. "Older Males that drank heavy and smoked heavy overweight get Esophageal Cancer". Wrong! December 2005 Keith went for his yearly scope, no biggy as we were used to doing each year. we had a great Holiday, then on January 3, 2006, we got the call not the normal letter that Keith needed to make an appointment.We went in that day and all I remember is the look on the doctors face his voice saying I am sorry he converted to Cancer. Most of the rest is a blur. He converted to adenocarcinoma of the esophagus, we stayed strong as best we could to try and help the kids cope, even though I was told he was having major surgery that he might not come back from. His surgery was 2-1-06, they took out his complete esophagus 3/4 of his stomach attached it at the top of his neck and pulled the intestines up. The first 2 weeks he was in intensive care and they were preparing me that he might not make it, I prayed everyday and on 2-14-06, the most romantic day of my life, he got better beat all the infections and came off the respirator, they let me stay in the room and he squeaked out the words I LOVE YOU, once the tube came out, he cried I cried and the whole hospital team cried. He recovered quickly after that and was home 2 days later. We made it through and I just kept my faith. He did well till he started chemo and that really took a toll on him, the kids and I stayed strong, they were his caregivers while I worked and then I took over when I got home till the morning. In August 2006, my son called me and said dad just is not right but he didn’t want to bother me at work because we needed to pay the bills. My kids called me anyhow and they are very mature for their young years, I didn’t hesitate I sent an ambulance to get him and bring him to Yale. If my son didn’t call he would have been gone when I got home. He developed a cardiomyopathy (virus that attacked his heart) and when I met him at the ER he was critical. Keith has had many complications over the years since diagnosis, but has fought and overcame them. things are done differently now. they do chemo before surgery, then a wrap up chemo if needed. the complications are less done that way. each year we learn more and more about EC and do what we can to help others get awareness out. We are here we are still fighting many battles financial, still some health problems with Keith. Just know that people are surviving find the doctors with the most knowledge in treatment of Barrett's and Esophageal Cancer and never give up hope. Maggie and Keith Solsbury
10
Avatar Image
Roger Tunsley - Stage III
Diagnosed stage 3 adenocarcinoma in April 2006, I went through chemo and radiation, then surgery in August 2006. No complications afterwards, but it took some time to get used to the new ways to eat and sleep. I'm on the board of the ECAA and you can always contact me at rtunsley@ecaware.org.
10
Avatar Image
David, McGeoy - Stage IV
I was diagnosed with Stage IV adenocarcinoma in October 2006, marked by 3 distant lymph nodes and lesions in the stomach. Radiation and chemo shrunk the tumor by 60%, allowing us a crack at resection. An Ivor-Lewis pull-up, with En Bloc lymph removal was performed in February 2007. 6 years of remission ended in November 2013 with a tumor in the Mediastinal area. My left vocal chord became paralyzed, leading to severe aspiration and repeated pneumonias. Radiation and chemo killed off the tumor but damaged my lungs. I'm in remission, doing Herceptin until this December. My new reality is severe lung damage, with Bronchiectasis and COPD as my companions.
9
Avatar Image
Aoife, M - Stage III
I was diagnosed with oesophageal cancer in 2006 when I was 32. I had symtoms of ainability to swallow for several months but no-one would listen as I was 'too young'. I was getting to the stage of having problems with water. My then on-off fiance has crohns and got me an appointment with his gastroenterologist and I was diagnosed within days then. I aslo started to plan my wedding which was 2 weeks post chemo. As I was diagnosed late there was no time for freezing my eggs. I had the three stage surgery (total oesopgagectomy) in early 2007 and ended up getting double pneumonia and ended up on dialysis for about 3 weeks, they revived me 3 times during that period. I decided to try for a family and my son is 3, my daughter is 2 ) I am thrilled to still be here and enjoyiing being a mummy.
9
Avatar Image
Gordon Dickson - Stage II
Diagnosed T2N0M0 in October 2006. No Chemo or Radiation. Operated on December 28 2006.
9
Avatar Image
Deborah, Brown - Stage I
I was diagnosed in 2007 with T1N0M0 esophageal adenocarcinoma. Had THE surgery to remove the tumor. Still struggle with eating issues and shortness of breath. Stomach pullup has the pouch laying right between left lung and heart. Have gastroparesis so stomach doesn't move and pyloric stenosis from scar tissue inhibiting food from passing out of stomach. Had ulcers and GERD for 32 years and Barretts for 10 years before it converted to cancer.
9
Avatar Image
Jon, R - Stage III
I was diagnosed with esophageal cancer April 2007, five weeks of chemo and radiation. July 2007 had a minimal invasive esophgectomy. I am 72 years old retired from law enforcement. I am doing all I did before E/C. Riding and taking care of my horses, skiing, hunting, golfing, gardening, traveling and taking care of my acreage. With my new normal, I just can’t do as much or with the same intensity. I mentor cancer patients with Imerman angels.
9
Avatar Image
Jerry, B - Stage IV
9
Avatar Image
Martin, W - Stage I
It was six years ago , at the age of 70, on September 5, 2007, that I had my first operation, an esophagectomy. I had been diagnosed at the end of June. I came through the very long surgery and the day after was doing relatively well but my blood pressure was quite low. The second day I ran into some severe complications which turned out to be caused when the stomach connection necrotized . I was moved from the step down unit into the ICU and my head had blown up like a football . They nearly lost me at that time. My doctor was quick to recognized the cause and I was rushed back to the operating room for emergency surgery to undo everything that had been done initially and the toxic parts were removed...My stomach was put back and I had all sorts of tubes connected to his body. At the top of my neck , what was left of my esophagus was brought out and a bag was placed in it to catch my saliva . There was no connection between my and my stomach and I had feeding tubes directly into my stomach. I could no longer eat or drink anything by mouth and was tube fed for many months. I was very, very sick and was in the hospital for over a month before I was released to come home with Home Care to gain my strength back before the doctor would attempt to reconstruct a false esophagus for me in the future. We had all kinds of Homecare helpers including Occupational and Physio therapists, nurses, dietician, social worker, PCA ‘s , our family doctor for the next 8 months. All this including the formula and drugs I needed, was supplied and covered by our OHIP. Eight months after my first two surgeries I had some further tastings regarding the feasibility of the reconstruction and in April of 2008, I had an 9 hour surgery during which my doctor constructed a new esophagus using 18 inches of my colon, She was able to leave his stomach where is was supposed to be and attached the colon at the top of his neck after she removed his collar bone on the left side to be able to make the join. I survived yet another operation and eventually was reintroduce to food and liquids. I continued to have home care for several months after I returned home but I was once again able to eat real food and because my stomach was in the right place , I can eat normal meals and most everything. I continued to see his surgeon regularly over the next few years and had the CT’s and other tests that were necessary . I was very heavy before my initial surgery and I eventually lost a lot of weight. I did not go back to where I was before the surgery but I now maintains a comfortable weight and looks and feel terrific. I had my 76th birthday last June. At my five year appointment in September 2012, my doctor deemed me cancer free and she released me back to our family doctor who keeps regular checks on me. I am quite a miracle and we thank God every day for the care I had and the prayers that I am quite a miracle and we thank God every day for the care I had and the prayers that were said on our behalf. We are very much into promoting awareness and early detections and we try our best to be supportive of other families who are going through their treatments with this dreadful disease. Our prayers are now for them.
9
Avatar Image
Mike Lynn - Stage III
I live near the Mayo Clinic where I was diagnosed and treated. In August 2007, I was diagnosed with stage 3B locally advanced poorly differentiated T3N1Mo adenocarcinoma esophageal cancer. I was treated with 28 doses of radiation and 2 separate rounds of cis-platinum/5-FU chemotherapy. In December 2007, I had surgery (esophagogastrectomy Ivor Lewis procedure). I have been NED since the surgery.
8
Avatar Image
David Miller - Stage III
Diagnosed with stage 3 EC in late 2007, age 60. Treated with radiation, chemo and en bloc (three-hole) esophagectomy in January 2008. Now retired (and discharged as an EC patient), I volunteer, counsel EC patients in my area and enjoy an active life in coastal Rhode Island.
8
Avatar Image
Brian Galgay - Stage II
Diagnosed at 23, Surgery (UPMC), Chemo (MSKCC). In regaining my health, I have vowed to help the EC community. Since 2009, I have served ECAA.
8
Avatar Image
Barbara Hassan - Stage II
I was diagnosed in 2007, surgery in 2008 with ivor lewis procedure. chemo followed. Tough road but I am 6 1/2 years in remission. Willing to help out where I can for this disease that is not as 'popular' as the other cancers, therefore does not get a fair amount of coverage
8
Avatar Image
Elizabeth D - Stage I
8
Avatar Image
Judi, W - Stage II
I was diagnosed when I was 68 at stage 2 in Jan. 2008 Went through chemo, radiation and Ivor-Lewis surgery. Chemo was very difficult for me but the worst effect I had was that I went into a major bio-chemical depression that lasted 11 months. We believe it was triggered by Reglan, In May 2009, I was back to myself (mentally) after spending quite a bit of time in the hospital. I was doing so well I gave a speech about cancer and depression to 300 cancer survivors. I went back to consulting, teaching teachers all over the US. Today, I have been NED for the last 5 years. I am coming up on my bi-annual visit with my Oncologist so, I am feeling "scanxious".I am back to walking 1-2 miles almost daily. Last summer (2012) my husband & I moved from NJ to Portland, Or to be near my son, who lives in Portland and my other son who lives in San Francisco. It was really difficult for all of us being so far apart when I was sick. I still have some issues regarding eating but nothing I can't deal with even if I get frustrated because I can eat something one day and be fine. The next day, not so fine. I am loving life, enjoying my good fortune, and not worrying about what may come down the road.
8
Avatar Image
Steve, S - Stage IV
8
Avatar Image
Jim, M - Stage II
Diagnosed T2N0M0 in March 2008. Chemo / Rad then MIE Surgery in August 2008. Recurrance in March 2011. Chemo / Rad again. NED since.
8
Avatar Image
Jean Roop, Iowa - Stage IV
Diagnosed in May of 2008. Six weeks of Radiation and Chemo, esophectomy and removal of 30% of my stomach in August. 24 dilation, the last 6 at Mayo with some cutting done (2008-2010). By the grace of God still cancer free!
8
Avatar Image
Robert Oestreich - Stage II
I was diagnosed in 2008. My cancer was stage 2. I had the Ivor-Lewis surgery on September 10, 2008. No chemo, no radiation. I sold my business in December of 2008 and have been retired since. I am doing well and have had no recurrence.
7
Avatar Image
Jeff , G - Stage IV
Was diagnosed with EC in August 2008 stage 4 and given 6 months to live. Referred to Dr James Luketich at Hillman Cancer Center in Pittsburgh. Had an esophagectomy November 12, 2008. Dr. said he was sure that he got all of the cancer, but wanted me to take 4 chemo treatments as a precaution. Recovered from the surgery and was able to ride my Harley on Christmas Day 2008. Only rode about 20 miles because it was 15 degrees out, but the best ride of my life because I was alive to do it. Took 4 rounds of chemo starting in January 09 and last one in April. Have only had 1 dialation since my surgery. I eat anything that I want and aside from coughing when I eat, have no problems at all with food. The only other problem I have is that I cannot roll around on the ground working on things because the acid tends to roll up from what is left of my stomach and gag me. November of 2013 was my 5 year anniversary of being cancer free and am considered cured. Not too bad for a guy that was supposed to be dead in 6 months.
7
Avatar Image
john, s - Stage IV
FRESH tumeric 4 STICKS ginger 1/2 a good size piece capicum peppers, to taste garlic 2 pieces GRIND THEM UP IN A BLENDER with a little olive oil & a half shot of vodka Then mix in V-8 veggie juice to fill and blend cuts the radiation pain, relieves nausea from chemo and does in fact helps kill cancer.. Go to the MD Anderson web page and search on tumeric http://www.curcumin.co.nz/pdf/Curcumin_Getting_Back_To_The_Roots.pdf I was stage 4 and symptom free after my first week.. I would also recommend my surgeon Cardiovascular & Thoracic Surgery: Kiernan Paul D MD
7
Avatar Image
Harry, Hank - Unknown
7
Avatar Image
Gary, S - Stage I
Had surgery January 2009.
7
Avatar Image
Jon, V - Stage IV
Stage IV survivor. Diagnosed stage iv Oct 08 with Barrett's Esophagus with a tumor 15cm down esophagus. Tumor grew through back wall of esophagus and infected lymph nodes in chest and clavicle. Prognosis was I was not a candidate for surgery with less than 6 months. Went to 4 doctors when I was given Hope by Oncology department at Guthrie Medical in Sayre, PA. 30 days of radiation combined with chemo cocktail of 5FU. Diagnosis as of 05/05/2010 of NED. Thank you Jesus and Dr. E. O'Brien for my second chance at life.
7
Avatar Image
Marty, L - Stage IV
I am a lawyer in private practice for 35 years. I am married and have 2 sons ages 27 and 22. August will mark 7 years with no evidence of disease. I am retiring at the end of 2016 and I would like to offer hope to others with advanced disease by donating my time. I will have plenty of it. I live in Bethesda, MD.
7
Avatar Image
carl, p - Unknown
7
Avatar Image
Joseph Grande - Stage I
Retired military, working and living in Seattle WA. Diagnosed with Stage 1a June 2009, Ivor Lewis (THE) surgery at Swedish Cancer Institute, Seattle, August 2009. No chemo, no radiation. Dr. Louie individualizes treatment for each person.
7
Avatar Image
Len, S - Stage I
Diagnosed June, 2009. Stage 1 Esophageal cancer. Esophagectomy September 2009 at Johns Hopkins Hospital in Baltimore. Dr. Yang. No Chemo, No Radiation
7
Avatar Image
Debbie, S - Stage I
I was diagnosed at the age of 55. Had surgery, radiation and chemo at Cancer Treatment Centers of America in Chicago. Had to go on disability where I worked in property management, Would like to talk to others that have survived this and continue to be productive.
7
Avatar Image
Donna, N - Stage III
I was 65 when diagnosed and now will celebrate 4 yrs survivorship from my surgery date 12/08/09. It has been a bumpy road sometimes but I am so glad to have gone on this journey and appreciate every day that God has given me. I am retired medical typist and have a wonderful supportive husband, Ron, one son, Mike and his wonderful wife Angela and my 2 grandkids, Hope and Ali and my brothers and sisters and many friends and acquaintances who supported me all the way. Now I can eat and am very active, gardening, running my house, cooking and celebrating life with all my family and friends. How lucky am I!! I pray everyday for all EC pts and their families.
7
Avatar Image
Cindy hilsabeck - Stage II
Diagnosed T3n0m0. August 2009. Chemo, radiation and THE surgery in December 2009. NED as of march 2013. From algona, ia.
6
Avatar Image
Melinda B - Stage III
6
Avatar Image
Bruce, L - Stage IV
6
Avatar Image
Bruce , L - Stage IV
I was born and raised in Normal, Illinois. Parents, two sisters, one brother. Graduated HS, 1972. One year college, ICC. Peoria, Illinois. Married 1st time 1973. Became a glass installer for the next 30 years (Auto). Moved to Evansville, Indiana in 1983. Remarried 1985. Wife passed away 1992 due to Cystic Fibrosis. Honestly went a wee bit crazy due to depression. My breakfast usually consisted of Coffee, couple of smokes and a package of Rolaids which I consistantly took all day. I thought it was my lifestyle. Did take Tagament in middle 80"s when you had to have a prescription for it. Eventually it quit working and it was back to the Rolaids. Moved back to Illinois in 1999. Returned to school, earned 1st degree and was in my last semester of my second when docs found the cancer. I was stage IV EC. This was December 2009. Had to quit school and went the Chemo and Radiation route. Surgery in June 2010. After recovery docs said go home and enjoy life as best as I could. You probably have 12-14 months. I've always like to prove those in authority wrong and I'm still here 5 years later. I have to watch what I eat and most days make sure last meal is eaten by 5pm. If I don't do this the problems start showing up around 12:00 or 1:00 am. I make sure to get exercise each day and play golf 1-2 times a week. I feel very blessed for the time given to me as many who were diagnosed around the same time as I was are no longer with us. I live each day to the best of my ability and thank the good lord for each of these days.
6
Avatar Image
Margaret McD - Stage III
I had been treated for at least 10 years for acid reflux and had an endoscopy 7 years before. The acid reflux was no longer under control and my Dr saw something in my bloodwork so she sent me to a Gastroenterologist. He did an endoscopy and found the cancer. I was 54 years old, Stage 3. I kept reading that the best chance for survival was to find a place for treatment with lots of experience. I ended up about 3 hours from home at Roswell Park Cancer Institute in Buffalo, NY for radiation & chemo for 6 weeks, Ivor-Lewis surgery in June of 2010 and another round of chemo in the summer of 2010. I finished my last chemo on my 55th birthday. I did appointments every 3 months for the first 2 years, CT scans every 6 months. I have been cancer-free since then!
6
Avatar Image
bob lynah - Stage I
I was treated for asthma for a few years & finally diagnosed with acid reflux, I never had the heartburn symptons. I was diagnosed with esophageal cancer and treated at the University of Rochester Medical Center. I had a esophageal resection & ablation.
6
Avatar Image
Michael, L - Stage II
6
Avatar Image
Sharon, M - Stage I
I was diagnosed stage1 in 2010 at 57 yes old. I had suffered from reflux for years and as it got worse my doctor increased my meds. My EC was found completely by accident. I had the Ivor Lewis procedure with the gastric pull up and was in hospital for 3 weeks. I got along very well, but am divorced and had very little support. I didn't need chemo or radiation,,, but have had depression since. I also have breathing problems and aspirate into my lungs. Just got over a bout of pneumonia, I do realize how lucky I am...especially after reading everyone stories. I see a therapist for my anxiety and depression. Also I have very few problems eating...but my system is not digesting the food properly. Just had a procedure done to widen the lower part of my new esophagus so the food can pass through.
6
Avatar Image
nancy, e - Stage III
I'm a 69-year old grandmother of 10, a writer, an avid free style dancer, and a therapist in private practice. I live near the Mayo Clinic and had my Ivor Lewis surgery done there by a surgeon who does 35 a year. I sailed through weeks of chemo/radiation, but spent four months in the hospital on a feeding tube after the surgery. I've now had 8 clean PET scans since then and I'm 100% healthy other than being a tiny size zero. Malnutrition will be a problem forever given that I have absolutely no appetite ever. I've written a book (not published yet) called "Dancing With Cancer". With a pic line in my arm attached to a chemo pump, I danced every week! The doctors believe that dancing saved my life. Note: for some reason this bio recorded 40 years since my diagnosis; it's actually only 3!!
6
Avatar Image
Bob, D - Stage IV
Diagnosed in Feb 2011 following difficulty swallowing. (Sound familiar?) This was my second cancer having been diagnosed with CLL in Jan of 2004 so I already had an oncologist. First protocol was one week of self administered chemo. ( Wearing the pack) followed by two or three weeks of radiation and then the surgery. I was not going to accept that. I went to Memorial Sloan Kettering in NYC and met with Drs Ilson and Baines. They wrote the book on EC. Ilson was the oncologist and Baines the surgeon. Upon glancing at the documents we brought with us to discuss my treatment, they dismissed them because they had wrote them and hadn't used them in twenty years. So, needless to say, I stuck with these two and they saved me. five weeks of chemo, a break and another PET scan then another five weeks combined with daily radiation at Yale/Smilow Cancer Hospital. Two months to cool off and the first follow up, a biopsy and CT scan. Negative! Subsequent follow ups and NED....No Evidence of Disease! I go for one in April of 2014 and if all goes well (and it must) then April 2015 and I have my five years out. I still watch the Leukemia though. As a result of this experience I began a 501-c-3 non profit called Sails Up 4 Cancer. If you care to browse my website it's www.su4c.org God Bless you all out there and I'd be happy to answer any and all questions.
6
Avatar Image
Gerry, S - Stage II
Diagnosed Feb, 2010. IL surgery, Mar 2010 Stage 2N1M0. 2 months chemo NED 3 years 61 years young, Working, farming, loving life! Enjoying life with wife of 39 years, winters in Fl, 7 grandchildren, grateful and blessed.
6
Avatar Image
dfd24 - Unknown
caregiver to patient is writing : diagnosis was march 2010 chemoradiation then operation july 2010. Recurrence march 2012. chemo july 2012 to march 2013 tumor tested for HER 2 : positive March 2013 new treatment started May 12 FOLFOX + HERCEPTIN / PET SCAN AUG 2013 good response to treatment/ Aug 2013 Irm of brain to check out something seen on pet scan : brain ok/ oxaliplatin removed from treatment to prevent neuropathy . treatment Herceptin + LV5FU2 / next pet scan DEC 12 2013
6
Avatar Image
Martin - Unknown
The last 3½ years of my life has been occupied almost exclusively with battling oesophageal cancer. I was diagnosed in the spring of 2010 and since then I have undergone four major operations but I have now reached the stage in my recovery where I am able to take up and enjoy cycling. My story, past and present, can be read in full on my blog at http://cyclingable.com
6
Avatar Image
Jenifer, F - Stage III
6
Avatar Image
Chad, Charles - Stage II
I was dx Nov. 2010. T2N3M0 I had pre op chemo and radiation. In March 2011 I had Ivor Lewis at MUSC in Charleston SC. Post op chemo for 6 weeks. All chemo and radiation was done at Self Regional in Greenwood SC. Still NED
5
Avatar Image
Lee, C - Stage II
Had MIE surgery at Mayo Clinic in Minesota on 12-20-10. Had complication at junction (hole) spent 3 1/2 months in hospital. Feeding tube didnt work so I was IV'd for 4 months. Hospital highly recommended.
5
Avatar Image
Brian, B - Stage IV
5
Avatar Image
Len, L - Stage II
I am 66 yrs old. I was diagnosed with adenocarcinoma of the distal esophagus on April 11, 2009. I began treatment almost immediately at the G.V. (Sonny Montgomery) VA Medical Center in Jackson, MS. A J-tube for feeding was placed first then chemo/radiation therapy followed by Ivor-Lewis surgery on July 20, 2011. 9 lymph nodes were removed as part of my surgery and tested for cancer, all came back negative. I was then diagonsed as being in remission with no evidence of cancer and have been that way since.
5
Avatar Image
Richard , W - Stage II
I am retired Military and was diagnosed as stage 2B in April of 2011. I had 5 rounds of chemo, cisplatin and 5FU in conjunction with 28 rounds of radiation. I was staged at T3N2M0 and had MIE surgery on August 31 2011. I am NED so far and my 2 year scan is coming up. I am from east central Illinois.
5
Avatar Image
ken, j - Stage I
5
Avatar Image
Peter, T - Stage I
77 yr old retired physician (radiologist) diagnosed with stage 1 adenocarcinoma esophagus June 2011. Had chemo therapy (no radiation-surgeon said would make surgery more difficult). Had IL surgery sept 2011. Staged T1N0M0.
5
Avatar Image
Joe, G - Stage IV
In 2011 I was diagnosed with 4 stage EC. Took chemo and radiation treatments and followed up with a esophageal resection. I was cancer free after treatments and had surgery just to be sure. 28 days in the hospital and lost 100 lbs. I am presently 160 and I actually try to gain weight but was told I would never have a weight problem. I was 265 lbs. when diagnosed in 2011. Recovery has been frustrating at times but something you have to do. I eat what I want, I just have to limit myself to how much. I have since retired and I do everything I want to do but I know my limitations and try not to over do it so I won't hurt my own feelings. If you have just been diagnosed with EC you are in for a tough battle and not many battles are won without a good fight. So my advise is be a good patient and be honest with yourself. Don't believe everything you think and most of all, Remember, "If you say you can you can. If you say you can't , you are probably right." See you in the "Winners Circle" & God Bless
5
Avatar Image
Karen, H - Stage IV
I was 45 when diagnosed. I had been l for several months and continually visiting the doctors t find out what was wrong with me. Once diagnosed after paying for an endoscope everything happened very fast. Chemo which killed the tumor completely and then an Ivor Lewis which happened just before Christmas 2011. I left hospital on New Years day 2012 and the pathology results confirmed that the cancer had gone as the 10cms of esophagus removed and the lymph nodes were all clear. Feeding tube removed at the end of January 2012 and just relying on the check ups and keeping my fingers crossed.
4
Avatar Image
Karen Kent - Stage II
I have a wonderful husband, three grown children, and one granddaughter, and a fulfilling career as a certified public accountant. In the fall of 2011, I was diagnosed with EC - stage IIB. That was a shocker! I had no issues with swallowing, rather I was experiencing some lower GI matters. I had an abdominal CT, which revealed a thickening around the esophagus. At that point I had a scope, and the tumor was revealed. I was referred to Beth Israel Deaconess Hospital to a thoracic surgeon and oncologist that I adore and truly believe are the best in the world. I was treated with chemo, radiation and surgery. I experienced lots of complications. Honestly, if there was a complication to get, I think I got it. Life after surgery has been a bit of a roller coaster. Getting used to sleeping practically upright and what foods will be okay versus an adverse reaction is still a work in process. Meds seem to be a good mix for the reflux. It was the support of God, my family and friends that got me through it. My biggest fear had always been cancer and there it was, there was no option but to deal with it, keep my faith, a positive attitude and never give up hope. I sometimes wonder if the cancer was God's way of helping me to face my fear and directing me to help others with this disease. I'm now committed to doing all I can to help others and raise awareness.
4
Avatar Image
Stacy A. - Stage IV
In late 2011, I experienced dysphagia (swallowing difficulty) and was diagnosed with cancer less than 90 days after first noticeable symptom. Met with cardiologist and GI prior to diagnosis but due to pregnancy - diagnosis was delayed. I experienced pregnancy loss a month prior to diagnosis. (2012) - Went to ER on 21 Jan and was dX'd Stage IV Esophageal Adenocarcinoma w/mets to lymph nodes & liver due to "silent reflux", HER2 positive on 25 Jan 2012. Chemo only w/Herceptin. (2013) - Delivered 9th healthy baby. (2014) - Had subtotal gastrectomy w/HIPEC, omentectomy & lymphadenectomy, due to malignant tumor in stomach. (2015) - Dx'd w/Barrett's Esophagus - had 2 EGD w/Ablation treatments. (2016) - 3rd EGD w/Ablation treatment. Currently NED (No Evidence of Disease) Next CT & EGD scheduled for Aug 2016. Read more of story at www.caringbridge.org/visit/alexandercrew
4
Avatar Image
Dan G - Stage IV
Background Story
Nov. 2011 -Jan 2012: I had been having some trouble when eating in that I would get what felt like a gas pain a few bites into any meal. Often I could "clear" this by forcing a small burp or by drinking some water, and it would go away for the rest of the meal. However, these episodes became fore frequent over a period of weeks, so I called my doctor. I thought perhaps my old hiatus hernia had started to act up again, or we might need to make a change in acid-blocker medication, as I have had acid reflux issues for many years.
Feb 2-17, 2012: After several tests and scans, we confirmed a diagnosis of Stage IV Esophageal Cancer, due to spreading to liver, spine, lumbar, and lymph nodes.
Feb 24, 2012: Medi-port installed
Feb 29, 2012: First Chemotherapy Treatment
Chemotherapy has continued every two weeks since then. My EC is listed as "INACTIVE" with chemo alone.
November, 2012: PET scan showed a small spot on a Lymph node, which we quickly zapped in December with a short-course of 10 radiation treatments.
May, 2013: Trip to Boston (Mass General) to consult, and join a clinical trial which will take a piece of my tumor and run against 15 specific genetic markers they have identified. While this may not be useful right now, it could help direct treatment in future.
4
Avatar Image
margie - Stage III
4
Avatar Image
Margaret Procter - Stage III
Margaret enter a brief summary
4
Avatar Image
Ian, T - Stage IV
diagnosed stage VI on March 10th 2012 with mets to several lymph nodes and three spots in the liver. Had 10 days of radiation before seeing the medical oncologist who gave me three months to live or 8 months "if I wanted to try the treatment". I had lost 70 pounds between February and May, I did not have any trouble swallowing but could not keep anything down and if I had a particularly bad reaction I could spend 2 or 3 hours over the sink spitting up stomach acid (but no food!!). After the radiation and the first chemo, which was ECX, I was able to eat normally again and by Christmas I was down to just one tiny pinprick in the liver. In February 2013 I was rushed into ICU with what turned out to be streptococcal pneumonia and my blood pressure was 50/30. At this point, which was midnight on a Saturday, I was given 15 minutes before i went into coma or worse! Sunday morning I was sat up eating my breakfast!. As I missed three treatments during this time the next scan in March showed that the tiny spot in the liver had grown again so back on the ECX. Unfortunately this didn't work and the tumour was still growing. Now on Irotinecan and have another scan on 13th September?
4
Avatar Image
Robert, C - Stage III
4
Avatar Image
Bonnie, H - Stage III
I was diagnosed with T3N1M0 in May of 2012. I chose MD Anderson to have my treatment. I received chemo and proton therapy for 6 weeks and then had the Ivor Lewis surgery. I had many complications and had to stay in the hospital for almost one month due to leakage. No food or water for 9 weeks. I am back to almost 100 % of my normal self today. It is difficult to keep my weight up.
4
Avatar Image
Ricky Ruffin - Stage III
While in a conference meeting for work I had a coughing spell that started making my right rib area hurt. After a day and the pain not going away I went and got an X-ray at hospital and they saw nothing. I also made an appointment with my gastro dr as I have had Barrett's Esophagus for a few years and colon polyps. And I wanted to know what was causing the pain in my side. Gastro dr did a colonoscopy and an endoscopy on me and then called me in for the bad news. They found adenocarcinoma at the EC Junction and then he referre me to MD Anderson for follow up. I also met with an Orthopedic dr who took an additional xray and found a hairline fracture that was causing the pain in my side but if not for that pain in my side I'd never have gotten the colonoscopy and endoscopy as I was not having any symptoms with food or my throat. Tests, and tumor board meetings decided I was stage T3N1M0 or stage 3 cancer. The protocol used on my would be 5 1/2 weeks of combined chemo (oral pill xeloda 5 days a week along with my 5 days a week of proton radiation). I also had a Docitaxol and steroid drip each Monday for the 5 1/2 weeks as well. After about 10 weeks I elected to have the Ivor Lewis Modified Esophogectomy n November 2012. A J-Tube was also installed during surgery and while I was in the hospital they taught me how to use the Jtube. I was released from hospital after about 10 days and could only use J tube until I had a successful leak check of my surgery site at day 14. I was then allowed to start eating , slow at first and continue making up nutrition with my J Tube. I was not able to maintain my weight without supplementing through the J tube until almost 2 months after surgery at which time I was able to eat enough to maintain my weight and the J tube was removed. Scans were scheduled every 6 months for first 2 years and an annual endoscopy to look at the surgery site for any problems. I've been fortunate in the fact that my complications have been minimal compared to others. I did grow some adhesion at my surgery site to my diaphragm that took some physical therapy to take care of.. I am on a yearly scan cycle now and I'm due for my 3 year scan in November 2015. I've been blessed beyond measure. Eyes have been opened to hope fragile and important our lives are. I volunteer with a group that pairs survivors and care givers with people that are starting this journey and it's really sad when I become friends with them and then months or a year later their Cancer returns with a vengeance. I've lost too many friends that I have met through the different EC sites and I try to tell everyone I know to PLEASE GET CHECKED!!! Early diagnosis can save your life.
4
Avatar Image
Carrie, m - Stage III
4
Avatar Image
Steve, O - Stage III
10-7-2015 After almost 3 years post surgery, I will share the following views and information. My health continues to be good. I do have a small issue with low hemoglobin but this is not a large concern to my team. It does however prevent me from donating blood. Initial diagnosis 8 August 2012 at age 58. This after years of heartburn and reflux. In the end, I could not swallow coffee comfortably at times and this was the reason for seeking help. Was given both scopes ( upper and lower ). Told I had a tumor the size of my fist at the base of my esophagus ( G.I. Junction ). Treatment started in about a month after further diagnosis, staging and scheduling. 28 radiation, 7 chemo. Surgery scheduled and re-scheduled 3 times in one week. I opted for 2nd opinion. Cancer Treatment Centers of America then took my life in their hands. Surgery 11-20-2012. 28 day surgical recovery ( peristalsis ). Hot nodes found. Albation of liver cysts. 26 days, the miracle happened and the lower GI woke up. Released to home and returned Christmas week 2012. Wound vac dressing and feed tube removed late January 2013. Post chemo started 1-2013 and continued through 3-13. Many, many issues with the post chemo. Kidney stones. 4-29-2013 scans showed “unremarkable “ status. I was stretched ( dilated ) starting sometime during post chemo ( likely February ). Was eventually on a 3 week schedule and intubated/general anesthetic due to tissue quality and GI being scared of blowing my new esophagus. Continued 3 month dilation until 9-2015. 6 month starts until change needed. Starting weight 255 lbs. Eventually down to 185 in November of 2013 ( year post surgery ). Rec'd physical therapy in June of 2013 and had been walking/remaining as active as I could. Eating, well, it was what it was. Nutri-bullet was a very good investment. I learned that eggs were my friend along with most soft foods although my tastes changed daily sometimes. Very much a minefield in finding something that tasted good continually ( eggs and coffee being the exception ). Started riding an old Trek road bike ( that's bicycle ) in November of 2013. Found a couple more bikes on craigslist and rode all winter. Weight became stationary and appetite became much more stable through 2014. Continued clean scans. Many issues with sleeping in a chair vs bed. Aspiration pneumonia once. Eating and learning about all the issues involved with digestion have been an excellent education albiet very frustrating at times. I participate in what will be called period re-enactments of historical significance. Mountain man rendezvous. Steam tractor events. My first event post treatment was 6-2013. Very rough times but felt very good to be alive and able to go. I am a blacksmith. I was no longer allowed to work my day job and felt blessed to be able to do anything. 2015 has been a good year. I wish to thank the Esophageal Cancer Awareness Association and Rhonda Small for the support they give myself and countless others. I found this group on facebook. I continue to read and post there most days. Sharing hope is paramount in our disease. Yes, it is a brutal disease. I have lost 2 personal friends and several other community members to this disease. I do have two close friends that survive and have met several survivors on the facebook page ( one lives within 60 miles ). I have been involved in more than one event raising awareness for E.C. and will continue to carry the beacon of hope. I spend time on the phone with folks I meet on the facebook page and I share time on messenger and email. The only possible way for me to keep the blessings I have is to give them away. I am honored to be able to help.
3
Avatar Image
Anthony Mendola - Stage IV
I am 68. Was diagnosed with inoperable Stage IV EC adenocarcinoma with mets to lymph nodes and given 6 mos to live Sept. 2012. Thanks to my Doctors, my wife and family I am still here! Chemo and Rad treatments. Life is Good.
3
Avatar Image
Mary, H - Stage I
I'm an RN currently working in a Same Day Surgery Center. I am an active person who loves horses and riding. I have two grown children and two Granddaughter's. Diagnosed in September 2012 with Stage 1 SCC. PET scan negative. EMR performed October 2012. EGD with Cryotherapy done x 2. Cancer free so far. Feeling very blessed!
3
Avatar Image
Robert S. McFadden - Unknown
3
Avatar Image
Michael, Baldwin - Stage III
52 years old. In November 2012, I was scoped, where cancer was discovered. Stage III EC. January started 5 weeks of daily chemo and 7 individual radiation treatments. Surgery in April, Ivor Lewis with total jejunum pullup, stomach removal. 4 weeks in hospital. Had feeding tube and removed 3 months after surgery. Have become highly lactose intolerant, dumping syndrome is a daily chore. Trial and error with eating. Scope next month (Sept)
3
Avatar Image
ann, c - Stage III
I was diagnosed with squamous cell carcinoma of middle region of oesophagus stage 3 I was treated with chemotherapy and radiotherapy .my treatment finished in May 20/13 .been in remission .
3
Avatar Image
Irza, B - Stage III
Married, mother of 4 awesome boys. Healthy, and exercised 5-6 days a week. Diagnosed 9 days after my 39th birthday--Moderately differentiated adenocarcinoma of the esophagus, Stage 3. I had symptoms for about 2 months, "food getting stuck at the bottom of my stomach". I had just finished my 2nd 1/2 marathon. Planned on doing 5 by my 40th birthday. No previous medical history. Ate pretty healthy. Weight normal. I knew something just wasn't right. After diagnosis, I immediately had 2 rounds of chemo, 28 rounds of radiation and then surgery to remove tumor on March 7, 2013. Crazy ordeal. After surgery, pathology report stated No cancer left, but found 3 out of 12 lymph nodes affected. All 12 lymph nodes removed, as well as bottom 1/4 of esophagus and 1/4 of stomach. After surgery, had 4 more rounds of chemotherapy. Oh yes, I am also Her2 Positive, which means aggressive type of cancer, but responds well to chemo. Type of chemo--cisplatin, 5FU and then Herceptin. Doing well to date, CEA levels being monitored every 4 weeks. CEA normal levels. I continue to exercise about 3-4 times a week, not as much cardio as before (having numbness to feet and hands at times). I have incorporated Yoga, and plenty of meditation to try and not to STRESS..as ordered by my Oncologist. Thank God for my family and friends who have helped me in this journey!!Ultimately, it has been thru Faith, mind and body and definitely the will to Survive which has allowed me to Deny EC, in the hopes of helping others and sharing my positivity that together, there is hope and one can beat cancer and LIVE!!
3
Avatar Image
Brian - Stage II
I am a second time married father of four girls and step-father to three boys that is originally from the Midwest. I was diagnosed very early on as pertains to the usual diagnosis of EC. So early on in fact, they could not differentiate what type of cancer it was as pertains to adenocarcinoma vs. squamous. All they could tell me was that it grew out of the Barrett's Esophagus that I had had (didn't know I had that either). The diagnosis was in Mid-December of 2012. Initially set as late Stage 1 N 0. Had surgery to remove 2/3 of the esophagus and the upper portion of the stomach (mass was at the gastric junction) in late January of 2013. At that time it was re-staged at Stage 3 N 3. Since that time I have been NED but am still losing weight and have been re-staged again to Stage 2 N 0. All scans that I have had to date show clear and clean! So so far so good! One year and counting. :)
3
Avatar Image
Aaron G. - Stage III
Stage 3 N 0. Diagnosed in January of 2013 20 days after my 40th birthday. Chemo/radiation followed by the surgery in June. I did not suffer from reflux or heartburn. I have never smoked and rarely drink. I can't help but wonder if the last 10 years as a firefighter isn't to blame. Recovery has been frustratingly slow, but I plan on being back on my rig by the end of the year.
3
Avatar Image
Tim, R - Stage II
Diagnosed Feb 2013 at 56 yrs old. Never suffered from acid reflux, never smoked, social drinker occasionally. 28 radiation treatments with 7 chemo's (same time). Robotic surgery Jul 1 2013. Hospital stay 7 days. 2 rounds of follow up chemo pills (2 weeks on, 2 weeks off). First cat scan since surgery is scheduled for Jan 13, 2014.
3
Avatar Image
Grant, B - Stage II
I am 44 old South African living in Sydney and was diagnosed with adenocarcinoma esophageal cancer in February 2013. My life was saved by my wife's diagnosis of colorectal cancer a week before mine. I was asymptomatic and once she was diagnosed she insisted that I get checked. I argued with her, but in the end had the endoscopy. I actually felt sorry for our poor doctor when he had to give both of us a positive cancer diagnosis in a week. it was a tough week for the two of us and our daughters. The funny thing about both being diagnosed at the same time was that we could support each other without feeling sorry for ourselves. Having two daughters, we had to just "get on with it" Chemo, radiation and an Ivor- Lewis later I am in great shape and both of us are clear at this point. I believe that we can overcome anything, you just have to put your mind to it
3
Avatar Image
vicki, r - Stage III
Diagnosed in february, stage III with possible mets to nearby lymph nodes. Chemo and radiation began in late march. Surgery in june 2013. Toughest thing I've ever done! Spent 4 weeks in icu due to pneumonia, blood clot complications and leaking issues. Have been in and out of hospital since. Had egd done 4 days ago 8/17/13 to remove food that was stuck, felt like I was choking. Unable to vomit. Have dry heaves 24/7 and dumping syndrome is aweful. 6 weeks post op had jtube removed. Have since lost 12 #. Weighed 170 in april 2012. Now weigh 129. Its a long hard road.
3
Avatar Image
Grace, W - Stage III
I am an 11 yr. survivor of stage lll lung cancer. Diagnosed 2/13 with squamous cell esophageal cancer. Underwent 3 rounds of chemotherapy followed by esophagectomy. Married with 2 children and good support. Semi-retired after owning an upholstery business for 32 years
3
Avatar Image
Alonzo Thompson - Stage II
3
Avatar Image
Andy, K - Stage II
Diagnosed with EC in March. Went through chemo and radiation treatments in May and June 2013. Esophagectomy performed at end of July. Currently in post op recovery waiting for follow up PET Scan at end of September 2013. Scan was clear and follow up scans were NED until January 2015. I started having a shooting pain behind my eye and into my right shoulder. I also lost my voice which the doctors initially thought was laryngitis. ENT saw that my right vocal cord was paralyzed. CT Scan showed that a lymph node on my right side at the base of my neck became cancerous. The tumor was causing pressure on my vocal cord and my nerves to my eye and right arm. Biopsy confirmed I has a relapse and it was decided that my best course of treatment was chemo. Surgery was not an option because of location of tumor. Went through 6 rounds of chemo for 18 weeks and then 6 weeks of radiation therapy which ended in September 2015, Since then scans have shown NED. Did end up having t have gallbladder removed in November due to stone believed caused by the changes in digestive track. Voice is back and other than losing weight am feeling well. Next scan scheduled for end of January 2016. Hoping to remain NED.
3
Avatar Image
jeff l. - Stage II
diagnosed may 2013. had esophagus, part of stomach, and lymph nodes (of which one had cancer in it) removed. after 6 chemo treatments, no sign of cancer, then four more treatments. in hindsight, probably should have stopped at 6 treatments due to neuropathy in hands and feet. BUT I'M A SURVIVOR
3
Avatar Image
Amanda, D - Stage III
I was diagnosed at 32 years old and it's been almost year since surgery and NED. I'm am always looking for ways to give back and encourage others.
3
Avatar Image
Justin Stout - Stage IV
I moved to PA with a job interview already waiting. The day before the interview I was having a hard time breathing . My wife convinced me to go to the ER and when they did a CBC my hemoglobin level was at 4.2. I was internally bleeding somewhere. They told me had my wife not gotten me in when she did I would've slipped into a coma or passed away in my sleep because I was a walking corpse. They administered 5 units of blood to me which barely raised above the danger level and of course they admitted me. A week of testing later and a day before my wife's 23rd birthday we were told I have Stage IV EC stemming from years of untreated acid reflux and without treatment I had only 6-9 months to live. 12 aggressive rounds of chemo (back to back) which included docetaxel,5FU,cisplatin and Herceptin and now 3 more rounds with just Herceptin and oral Xeloda . I already have to have my power port replaced after only having it in since May. This WILL NOT BEAT ME
3
Avatar Image
Phil, D - Stage III
3
Avatar Image
Patricia, S - Stage II
I was diagnosed with EC on 30-May-2013. I had chemo, radiation and then a 14 hour esophagectomy and stomach pull up on 19-Sep-2013. I was on a feeding tube for 4 months and on oxygen even longer. Last week I had a CT scan and it showed no cancer, although they did find a nodule on my right lung. I will have another CT scan in 3 months. I'm hoping for the best. Stay strong, everyone!
3
Avatar Image
Roberta K - Stage IV
Married to Scott 24 years this October, I have two children Michael 26 and Alanna 22. June 12th of 2013 Alanna gave birth to our grandson Walter. I love my family and this world I live in, the sounds of the birds in the morning and the sound of the ocean waves.
3
Avatar Image
Ted Coleman - Stage I
I had my EC surgery at Kansas Medical Center in Wichita / Andover, Kansas
3
Avatar Image
Michael, K - Stage IV
UPDATE June 22, 2015: Recent endoscopy revealed cancer at originating site. Subsequent PET scan showed no cancer outside of the esophagus. Minimally invasive Ivor Lewis esophagectomy is scheduled for July 27. Towards the end of May and on into June 2013 I started suffering from what I thought was gas and a general bloated feeling. Since I’d never experienced anything like it before and wasn’t suffering from heart burn I kept blowing it off as something that would straighten itself out. Besides I had an appointment with my primary the first of July and if it was still bothering me we’d look into it more then. On Sunday June 23rd I was supposed to be helping setup for our churches VBS program that was starting that evening. My stomach had been bothering me all morning and there was a tender spot right below my rib cage that was starting to hurt when I bent over. Plus I was getting dizzy and sweating like I was in a sauna. My wife told me to stop messing around and go to the ER. I drove up to MedStar Montgomery General where they confirmed I wasn’t having a heart attack but couldn’t do much for the stomach other than give me some candy coating medicine and tell me to see a gastroenterologist. That Tuesday I was able to not only see a gastroenterologist but they were also able to do an endoscopy. Unfortunately the result showed a tumor in my esophagus at the juncture with my stomach. A CT Scan the next day would show the cancer had metastasized to both lobes of my liver. I'm extremely fortunate that my oncologist is a researcher at Georgetown University. I went through 5 rounds of chemo using Folfox6 and I am now finishing up a trial of MEDI4736. My last 4 CT Scans have shown no discernible signs of cancer. My treatments will end October 6 and then we get to sit back and see if my immune system continues keeping the cancer at bay. You can read more about my incredible journey at www.2bluenewts.com Note: MEDI4736 is a human monoclonal IgG1 antibody directed against a component of tumour cells and immune cells known as the programmed cell death ligand 1 (PD-L1). It is believed that by targeting PD-L1, MEDI4736 may block this ligand from sending out a signal to T cells to ‘ignore’ tumour cells, thereby countering cancer’s immune-evading tactics.
3
Avatar Image
Bonnie, P - Stage IV
I'm a happily married stay at home mom with two amazing kids. I was diagnosed on 7/12/13, just before my 41st birthday. For years I had a sore throat when I woke in the morning and I always thought it was allergies causing post-nasal drip, because I've always had sinus problems. Didn't realize the sore throat was a sign of GERD and I had acid sitting in my throat every night! Unfortunately, I didn't recognize the symptoms until I was stage IV with major mets to my liver and a few other minor spots. I will be undergoing interventional radiology treatments to my liver in the next few months...I've been on chemo (FOLFOX then FOLFIRI) and herceptin since August 2013...the plan is to clear the liver so that I can have surgery on my primary esophageal tumor. Wish me luck!
3
Avatar Image
Inez, W - Unknown
I am 75 years young.. Picture was taken June of 2015..I was diagnoised July 31st 2013 with EC..have lost a step Grandson to EC on the 1st day of April 2013 I just knew I was doomed..Family was also in shock.. Very quickly I got accepted to MD Anderson Cancer Center in Mesa, AZ.. Went through all the screening & testing and was sceduled for surgery on Oct 28 th of 2013 ..after going to the hospital at 5:00am and coming out of surgery after 8:00 pm.. On a respirator and surprised I was alive..had a wonderful staff of Doctors that knew there is a God and gave Him credit for the success of the surgery.. One week in ICU another week in a hospital room then to a miserable convalescent home for not even a week.. My daughter insisted on taking me home & caring for me .. Feeding tube & all.. I do not know the type of cancer or the stage but it was early..I was on a feeding tube for 3 months..saw all the Doctors & they did not want to see me for 3 years.. It is not an easy thing to go through and alters your eating habits etc with half my stomach gone..but God is not done with me yet and I left home in AZ in June 2015 drove as Far East as West Virginia then to Wisconsin and West to Olympia, Wa .. Not sure when I'll be back to AZ now it's Almost Christmas 2015 .. Another year before I Check back if they call me.. Be positive and try to Live and enjoy everyday you get!! "A Survivor of EC" Inez
2
Avatar Image
Carl, F - Stage IV
2
Avatar Image
Duane, B - Stage II
I am 41 years old. I was diagnosed with T1a N0 M0 in august 2013 , Had THE September 27th 2013, Final pathology results came back T2a N0 M0 , All margins clear and out of 27 nodes clear. Cancer has been totally Removed. I have been healing very well. Can eat about anything in moderation, If i do to much get minor dumping (cramping and fatigue).
2
Avatar Image
Karen, M - Stage II
I was 51 when I was diagnosed with esophageal cancer. The only symptoms I had were that I was coughing and that I felt food getting stuck. I don't remember much heartburn. I went through chemo and radiation and that was followed up by surgery. I am very blessed to be cancer free.
2
Avatar Image
Missy, M - Stage III
Well it’s been a whirlwind trip to get to the other side of this disease (fingers crossed). I was diagnosed in September of 2013 and by 10/28 I was done with my 6 chemo treatments, 25 radiation treatments, had a port put in for the chemo and threatened with a feeding tube if I didn’t eat more. By this point I just wasn’t hungry. Surgery was 5 weeks later, had an amusing 14 day hospital stay. I was very fortunate that so far I have had no complications. Had my 3 month follow-up cat scan and checkup on 3/10/14 and so far everything is good. I have a walking trip to Canada planned for June with a few friends, so now my goal is to keep and positive attitude and work at getting my physical strength back.
2
Avatar Image
Glenn Mumford - Stage III
An Englishman living on Australia's Sunshine Coast. I moved up here in 2012, from Sydney, my home for the past 30 years, to be with Samantha, my true love and my caregiver since the beast arrived unexpectedly last year. Finance has been my career, both as a broker and as a writer...whilst golf and rugby have been my sporting passions. My cancer was picked up by chance, when I consulted my doctor feeling exhausted. I thought this was a repeat of an earlier heart problem, but it turned out to be anaemia. An endoscopy to check its cause found my tumour...which turned out to be S3N1M0. This was in September 2013. Chemo started almost immediately - cisplatin and 5Fu - with surgery in late January 2014. A further 9 weeks of chemo has seen me complete my treatment regime, feeling fine though a fair bit lighter - I was 85 kg at surgery...four months later I'm weighing in at 72 kg. Will the beast return? Who knows...I'm taking the view that life goes on so I'll make sure I enjoy it to the maximum. I've got a partner and two children I love and have been blessed this past year with my first grandchild. Life? It's grand!
2
Avatar Image
Greg S. New Jersey - Stage I
I had my entire esophagus removed in November 2013 after a diagnosis approximately one month prior. I had some post surgical complications but have come through with flying colors. I am now cancer free and love living each day. I would love to give back and be of help to anyone who is newly diagnosed or experiencing issues or problems. I have found that a good and positive attitude is a key component toward a quick recovery and toward good overall health. It is only until we risk losing something do we fully appreciate how much we took it for granted and how important it is (life, love, friends).
2
Avatar Image
William, Elsner - Stage IV
Stage IV no surgery. Chemo and radiation now just chemo. Doing good. Gonna kick this shit. Now on irinotecan and 5FU, nothing else has worked so far. Looking for Clinical Trials in the event this quits working...remember this is marathon not a race..Keep fighting and enjoying life, making lots of memories. Hugs. Be blessed stay positive and never give up the hope. I am a SURVIVOR
2
Avatar Image
Sam , L - Stage II
I was diagnosed November 2013, T3N1M0 adenocarcinoma GE junction. Did chemo radiation and surgery at Mass General in Boston. The road back was tough but I am now back to normal working , playing, enjoying life. All is well so far hoping for continued wellness.
2
Avatar Image
Marilyn, R - Stage III
I was diagnosed with T3N1 adenocarcinoma esophageal CA in November 2013; had chemo radiation for six weeks from January 2014. April 30 and May 1, 2014 I had a two staged laparoscopic esophagectomy at Cedars Sinai, LA. There were several post surgical complications, but these are mostly resolved except for the recurrent esophageal strictures, which seem common in those with anastomotic leaks, which I had. Eating is challenged by these strictures, so I'm in the process of repeated dilations. Medicine and available treatments are amazing now, and I feel so very fortunate to have these resources.
2
Avatar Image
Jerry C. - Stage II
STAGE II. Diagnosed with EC December 2013. Had 2 rounds of chemo. Had one course of radiation. Went to Barnes in St Louis March 21, 2014 for Ivor Lewis surgery. Cancer was only in esophagus, no lymph nodes involved. Stayed 10 days. Went home with a feeding tube in my left side. It was removed a month later. I went back to work November 1, 2014. ( My job is physically active) It took a year from my surgery to feel like my old self. I sleep with a large wedge. I eat whatever I want, just in smaller quantities. I drink Mountain Dew, just have to put it on ice to remove the fizz. I have to avoid bending over unless I have an empty stomach, but it's a small price to pay for being cancer free!
2
Avatar Image
Jeff W - Stage III
Like many of you, I had difficulty swallowing and after the second complaint to my regular Dr he sent me for an EGD. I'm so glad he did. I was diagnosed with Stage 3 Adenocarcinanoma in Dec 13 and underwent chemo and radiation in the following two months. Became extremely ill due to treatments and developed intestinal infection that nearly killed me. Spent four weeks in ICU then three more weeks in hospital before being released. I lost 50 lbs and came home using a walker. I regained enough strength to have the esophajectomy in June 2014 and it was successful. I've been living fairly comfortably since then but have to watch diet closely and rest often. I never returned to work. A recent CT scan showed nodules on my lungs that have since been biopsied and are metastasized adenocarcinoma. Bummer. Now I'm preparing for "SBRT" radiation treatment which holds promise. I'm blessed with a loving and caring wife and wonderful children and grandchildren and I've experienced fascinating travels in this world. I hope that I'm around for another 20 years to see more but I'm thankful for every day that I have here on God's green Earth!
2
Avatar Image
Jerry S - Stage II
My life was perfect. I was in business for myself, had a wonderful wife, successful children and learning how to enjoy my time. Then, I was diagnosed with esophageal cancer. Life turned upside down. I underwent months of chemotherapy coupled with radiation therapy, all culminating in an entirely invasive surgery. I had virtually every complication to that surgery the doctors told me about and spent more than 30 days in the hospital, as opposed to just the 10 predicted. Since then, I've had half a dozen procedures and an additional surgery. It is now shy of 2 years since I was diagnosed, only 5 months since my last surgery and I'm back to work full-time, in the gym 6 days a week and again learning how to enjoy life. If only eating wasn't so difficult and painful.
2
Avatar Image
Kevin M - Stage III
My wife had been after me to get my "50th Birthday ritual" colonoscopy scheduled for over a year. So as the end of 2013 loomed ahead and the possibility of loosing our insurance with a company's impending bankruptcy, it was scheduled for January 31st. We went to the local hospital. As a routine questionnaire was completed I answered a question that pertained to difficulty swallowing over the last several months. This was something I knew needed attention, but had put it behind me as a nuisance and nothing to worry about. The Doctor said since I was going to be sedated we should to a scope at both ends just to rule anything out. I told him it sounded like a plan, but only if they did the top before the bottom! They did a biopsy on something they found in the lower distal portion of the esophagus and sent it to pathology. The other end was clean and unremarkable. The scope was a Friday. On Monday morning, February 3rd, I was 2,000 miles from home and was asked to call the Doctor after hours when the office closed. I was told I needed to come home and schedule further testing the biopsy was malignant. Tuesday and Wednesday we had our first large snow event and my wife had been snowed in for two days making phone calls and multiple appointments. I was home by 7 am Thursday morning. The first appointment we had was to visit the funeral home and make all of our final arrangements. It was something my wife needed to do to put one foot in front of the other, "organized ciaos", taking care of business, wrapping up all the loose ends in order to concentrate for the big fight to come so to speak. By Friday the 7th my wife along with a wonderful nurse navigator at the Universtiy of Kansas Medical Center here in Kansas had appointments for an ultrasound scope, CT, PET Scan, the radiologist, oncologist and surgeon. We had assembled a top notch esophageal cancer team and we were coming out swinging. After 28 rounds of radiation to my front, back, side, along with 5 rounds of chemo, the sixth was canceled to to poor platelet count, it was time to heal. I waited a few weeks to re-gain my strength enough to work 30 days in order to keep the insurance. I finished my 30 days on May 21st and had surgery on May 23rd. The surgeon, Dr. Al-Kasspooles performed a transhiatal esophagectomy, removing the entire esophagus, 1/3 of the stomach using the remaining for a pull-up and 15 lymph nodes. The nodes came back clean. No follow up chemo or radiation is scheduled. On Feb. 7th I was diagnosed T3N0M0, on August 22nd I was declared CANCER FREE...now I live life until the next CT. So, glass half full or glass half empty? Who gives a rip? Drink up what is left! None of us know how much is left, but until the glass is flat empty, there is still something to enjoy. Don't waste a drop!
2
Avatar Image
Douglas, B - Stage III
2
Avatar Image
karl, k - Stage II
2
Avatar Image
Robert, Jones - Stage II
2
Avatar Image
Kevin, G - Stage IV
Retired from USAF 1 Feb 2014, after 20yrs of service
2
Avatar Image
Hal , I - Stage I
74 year old Retired USAF C-130 crew dog. Physically active, a little overweight, happily married and father of five girls. Diagnosed in 2014 during a routine exam due to Barrett's, with cancerous polyp. This was removed at Univ of Alabama (UAB) hospital in Birmingham and RFA was administered to address he Barrett's. all clear for a year and a half, when more cancer cell were detected. Now preparing for a partial removal of the lower portion of the esophagus.
2
Avatar Image
Terry - Stage IV
I was diagnosed at stage IV. I responded really well to chemo and radiation and post treatment scans showed no cancer other than the original site at the GE junction which qualified me to have surgery. Surgical biopsy showed cancer remaining in several lymph nodes and my upper stomach, all of which were removed. All the margins were clear and I have had 2 clear PET scans and have had no post op chemo or radiation. Advocate for yourself, it is hard to refuse an insistent and determined patient. 3rd clear PET scan 12-31-2016. 4th clear PET scan 3-23-2016. As of July 15, 2016, I am 2 years past diagnosis, still alive and kicking and doing quite well.
2
Avatar Image
Phyllis, C - Stage I
1
Avatar Image
Gary, S - Unknown
1
Avatar Image
Thomas, R - Stage III
1
Avatar Image
Buddy E - Stage II
I am a 62 y/o white male. I am married to the love of my life, Jamelle, and we have 6 children and 8 grandchildren. I am an ordained minister and at this time I am semi retired. We live in Camden, Arkansas, but have pastored churches in Louisiana, Arkansas, Kentucky, Alabama and Mississippi. I have never been a sickly person and thought of myself to be in fairly good health. I don't smoke or drink, but I was overweight. On December 13, 2014, I woke up with nausea and began to throw up blood. My wife took me to the hospital ER and I was admitted. A surgeon came in and met me and said I probably had a gastric ulcer, but to be sure, he would perform an EGD the next morning. Well, what we would hear the next morning from the doctor would shatter our world........but God!!! Dr. Perkins told my wife I had esophageal cancer right at the junction of the lower part of my esophagus and the upper part of my stomach. He said it was approximately 3 cm and appeared to be isolated to that one spot, but that a PET scan would tell us more. I was discharged a couple of days later and my PET scan was scheduled for December 24th. We live in a small town and most everything has to be done in Little Rock, Ark. Which is 2 hours away. On Jan. 3rd I went for an appointment with my primary care doctor who would give me the results of the PET scan, set me up with a surgeon, and an oncologist. Well, the PET scan showed that the tumor was consolidated to that one area, and it did not show any other bad areas. We then talked about a referral to a surgeon and we decided on Dr. Peter Kim in Little Rock. With the appointment made we left for home with a worried heart.....but God.....When we got to the appointment with surgeon a couple of weeks later, he told us that he was going to do a procedure/surgery called Ivor-Lewis surgery. It was scheduled for January 26th. After about 5 hours in surgery Dr. Kim came out and told my family that he got the tumor, that it did not appear to have been anywhere else. They had sent biopsies of the lymph nodes, which wouldn't be back for 4-5 days. He told my family that he had removed 1/2 of my esophagus and 1/3 of my upper stomach. I had a J-tube(feeding tube), chest tube, all that good stuff, and that I would be in ICU for about a week then be moved to the floor. He also said for precautionary reasons, I would need to take 8 treatments of chemotherapy. About 4 days after the surgery we got the good news...it WAS NOT IN MY LYMPH NODES!
1
Avatar Image
Gary, G - Stage I
Retired community Manager as of Dec 2014, diagnosed with adenocarcinoma esophageal cancer staged T1b just one year after retiring. Esophagectomy was preformed at Mayo Clinic (Phoenix) . One year out from surgery everything shows that I am cancer free. Every day my life improves and am learning to live with a new normal
1
Avatar Image
Martha, M - Stage II
I am a cancer survivor and had an esophagetomy in June 2015 to deal with two tumors.
1
Avatar Image
Stacia - Stage I
Diagnosed with Stage 1B esoohageal cancer Feb 13,2015. Had esophectomy March 23, 2015 and removed half of my esophagus and a third of my stomach. No radiation. No chemo. NED since. Truly grateful for my wonderful surgeon and to be a survivor.
1
Avatar Image
Brian Cummings - Stage III
I was diagnosed with EC in March, finished chemo and radiation in May and had the surgery to remove the esophagus on June 29th. I'll do a better bio at a later date.
1
Avatar Image
Dr S. Kumar - Stage II
Was diagnosed with stage 2 EC, underwent surgery followed by chemo and radiation. After 6 rounds of chemo and 28 days of radiation was declared disease free.
1
Avatar Image
Gayle, J - Stage III
1
Avatar Image
Donn, B - Stage II
I was diagnosed in June of 2015 with stage II. I am currently cancer free after under going chemotherapy, radiation and a Transhiatalesophagecty. I'm at home and trying to get the feeding tube removed.
1
Avatar Image
Mark, C - Stage I
Diagnosed with Stage 1B adenocarcinoma at age 54 following surveillance EGDs for Barrett's Esophagus. Went to MGH with recommendation to proceed with EMR followed by three cryotherapy treatments. No chemo, no esophagectomy and no radiation. Coming up on one year scope and praying for continued good news
1
Avatar Image
Eddie, R - Stage I
I was diagnosed with esophageal adenocarcinoma in August 2015. Had chemo and radio therapy and then an esophagectomy and stomach pull up. Now one month on, adjustment is tough but I am currently cancer free and finding this sight extremely encouraging.
1
Avatar Image
Stephen, C - Stage II
I was diagnosed stage 2a on Aug 17, 2015. Adenocarcinoma, possibly in node, but debatable. I had 6 weeks of chemo and radiation, followed by Ivor-Lewis esophajectomy. Performed by Dr. Ken Kesler at IU Simon cancer center in Indianapolis. I had no complications, was out of hospital on 7 days, and back to work in 6 weeks. My journey is just beginning. Learning to eat all over again. Have lost 70 pounds total and now at a good weight. (I was 338), so I had some weight to give. My wife has been my rock and has special insight due to her having Bariatric surgery two years ago. So far so good, I am working out again, swimming, and getting back to life after this dreaded interruption.
1
Avatar Image
LizMcdermott - Stage IV
1
Avatar Image
Laura, S - Stage I
1
Avatar Image
Mark, P - Stage II
I was diagnosed with stage IIA lower esophageal cancer in late November 2015, I went through six weeks of chemotherapy which included 28 radiation treatments at the same time. I had a six week rest and then surgery March 21, 2016. My surgery was done on the da Vinci robot I was in surgery 8 1/2 hours. Then I was in ICU for nine days on the seventh day they did a swallow test I passed. The last two days I was on a liquid diet. I had my feeding tube taken out after five weeks and now I have transitioned to solid food. I feel like I'm doing well I'm just relearning how to eat how much and what kind of food works well. I think this is the biggest challenge for all of us is eating after the surgery.
1
Avatar Image
Saverio, R - Stage II
1